The European Association for Haemophilia and Allied Disorders (EAHAD) is a multi-disciplinary association of healthcare professionals who provide care for individuals with haemophilia and other bleeding disorders. Its members include haematologists, nurses, physiotherapists, laboratory scientists and researchers from across Europe.
The United Kingdom Haemophilia Centre Doctors’ Organisation is an association of medical practitioners who work within the Haemophilia Centres of England, Scotland, Northern Ireland or Wales and have an interest in the care of people with Haemophilia or other inherited bleeding disorders.
HemoNED is the Dutch national registry that collects and analyzes data on hemophilia and related bleeding disorders to improve patient care and safety. By collaborating with treatment centers and patient organizations, it supports research, monitors outcomes, and promotes standardized, high-quality care.
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 46 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe.